Friday, April 4, 2014

29 March 2014
Saturday

Deja vu Repeats

Like that movie Groundhog Day, this Saturday seems to have been here before. Complete with the same attributes the pattern has demonstrated , a laid back quality that seems to fit the thank-your-lucky-stars Friday is past and the work week is done. And we don't have to gear up for work again until Sunday night mentality. This combination pervades the staff here. As the end of the week approaches, CENAs and nurses alike make references to what they are going to do this coming weekend. The standard work schedule, however, allows each employee only every other weekend open for themselves. The work schedule alternates three days on a day off, with three more days on then two days off. The staff trade work days among themselves as their family needs require. In this way everyone gets to work on the weekend somewhere in the month. The only constant shifts belong to the salary people, floor supervisory nurses who oversee everything that happens on that floor, facility administrator, facility nursing director, the director of rehabilitation.

This difference in these work schedules makes for a difference in the way the employees behave during the week. The folks that work through the weekend occasionally seem to be more approachable, while the salary workers are a little more aloof. I suppose that distance helps to retain their professional demeanor and allows them to make clear headed decisions that are a part of their job duties. But they never seem to be able to drop the professional persona to reveal the person hidden beneath. Thus the decisions that are made that seem to reflect the professional part of the decision maker, and not much that benefits the resident. Decisions that influence the resident act upon the resident as an object, not as a person that may benefit, the facility is the major beneficiary.

Now somewhere in the organizational hierarchy it was decided that to make the time spent here a little more enjoyable for the residents. There is a leisure cart containing reading material so that people might relieve their boredom. Nice idea. But the concept is not carried out very well. The leisure cart contains women's magazines that are several years old, old Zane Grey novels that are older than that, twenty year old Reader's Digest books with extra large print, and an occasional issue of Field & Stream with someone's favorite article ripped out. I find the leisure cart to be more filled with tedium than leisure. The idea of a leisure cart is good at the conceptual level, but the completion of the idea is very lacking. It seems to be stocked with someone's result from a collection of Spring cleaning from various homes. Rather than throw something out, it was donated, somehow the whiff of an insult seems to be unconsciously perpetuated through the leisure cart. If they are going to supply cast off material for leisure activities, how about old Scientific American, Smithsonian, or Nature, and Science magazines. How about library cast offs, there are sure to be some variety there.

Months ago I spoke with the supervisory staff here about doing some leisure activities here that are peculiar to me, I would be glad to help teach others some things like working with glass. I would need about half a room's space and a footlocker to preserve the tools. Well that would take too much space, we don't have that. But for some months now the resident population has been low here, and there are rooms empty and the CENA staff is constantly being whittled down, making life on the remaining residents here that much more difficult. Never fear, if you don't see anything on the leisure cart that appeals, we always have television. Yeah, right. So much for challenging the resident's free time. I am trying to figure out just what qualities of a resident's life television is there to serve?

Another indicator that it is the weekend here, lunch was just served, or as we call it the Saturday mid-day snack. During the week soup is often served with lunch. There is something satisfying to a bowl of soup with a meal. For some obscure reason Saturdays get by around here without any soup. Today the entree was a scoop of chicken salad (everyone else, the non celiacs, gets a chicken salad sandwich) accompanied by a small bowl of diced peaches. Last week's Saturday mid-day snack was three slices of lunchmeat with a slice of cheese. There were also two slices of gluten free bread, I suppose that meal had a dash of self-participation included so we wouldn't feel left out, build yer own sammich, whee! Last Sunday the noon meal was a scoop of egg salad, everyone else got egg salad sandwich. These folks go out of their way to make you feel right at home, although I'm here to say they got me all wrong, I am not that self deprecating or lazy at my house. I used to whip up a bowl of hot and sour soup with plenty of white pepper, or would weekly make a crock pot of Senate Bean Soup, served daily in the US Senate dining room, recipe available form the Michigan Bean Commission.

If good food is a key to one's improving health and maintaining of mental health these folks are definitely not on board with that. In fact I do believe they have no idea of the effect that food can have on people. I suggest a field trip to any sit-down style restaurant with these kitchen gnomes so they can experience for themselves the enlightening notion of good food for good health. There is so much more than calorie content alone. I have spoken with the head dietician, she is indeed a registered dietician. I asked her if she had any restaurant training in her background, “No”, she said, “Why?” The fact that she asked that question in return was most illustrative. It was obvious she never saw the implications of her lack of information background in comparison to being the food manager here.

The food here is a constant reminder that life has been and still could be better, I have never been in a situation where I have been so hamstrung in the ability to improve the situation I was in. Three times a day I am reminded that I have only two choices; to shut up and eat, or ignore it. There have been times when I just don't eat. The CENA staff here tracks the food that you eat during each shift. After a couple of days, the dietician comes to speak with me to find out if anything is wrong with the food. I take the time to explain the connection between eating and good health, physical and mental. She says that she understands, then leaves. The next few meals are no different. The sense I get is why try? Everyone pretends they want to do better by you, but the follow through is definitely lacking. What really hurts is seeing so many people who don't seem to understand, even when you take the time to explain to them.

Then I catch myself. I'm never going to make a dent with these folks. Their idea of a restaurant has a drive through window, food can be ordered through the car window by speaking into a clown face. The menu is on the wall or a weather proof placard outside near the clown face, the paper napkins blot the french fry grease from your fingers, but the special sauce from the burger never completely leaves your fingers. After that your steering wheel is forever filthy and you learn to settle for life corporately designed. Ain't life grand, what we ever do before Burger Doodle with their grease bombs came along?

One of the nurses the other day sat down to watch me take the morning's wad of pills I am supposed to take daily. (This is per one of the state laws. Medications are not to be left with the resident trusting them to take them on their own.) Some CENAs indicate that they have found an occasional pill hiding in a resident's bed, where the resident has lost it and it couldn't be found. The nurses take a darker point of view, the reason I have been given by some are to make sure the resident does not choke on the meds, others have said that they have found that the residents have been putting their meds in the trash next to the bed.

This particular nurse is from the more suspicious group. As soon as I put the last of the pills in my mouth, she leaves the room. I'm surprised that she leaves before I swallow. This leaves a very bad taste behind, she only stayed as long as she did to babysit the pill swallowing exercise. This time she sits down in my wheelchair and just watches me silently. There are eighteen pills, every morning, some of them are huge, I can take them only by themselves. As I swallow the third one she asks, “Why are you so quiet?”

“Because I am busy swallowing pills.” between swallows, I reply.

“I mean other than that.”

“I'm an introvert,” I respond, “I am comfortable with silence. Its like a canvas upon which the sounds of life are arranged. I like to listen to what fills in between the sounds, there is much to be found there.”

“What do you mean?” she asks.

“Just that, what you just said. How illustrative. Did you catch it? Its very subtle” I reply.

“I don't understand” she protests.

“Exactly, not everyone does” from me. “Its like trying to explain rock and roll to your parents, they don't understand either. They hope that you will give them a template of words that they can apply in expectation that they will know what you know.”

“So, what's wrong with that?”

I patiently reply, “Some people think their way through life, because that is the way they have been taught. Other people add their feelings to the mix. Feelings in one evoke similar resonant feelings in another. Which kind person do you want to be?”

“What do you mean?”

“What do you feel about a new nickname, how about “Barby Doll”?”

“I don't understand.”

“Indeed, with time, maybe ...”

Have you ever been in a room when someone enters, they start jabbering, filling the space of silence with lots of verbiage, and yet the feeling you get is the same as before anyone entered the room? There's no substance there, there is nothing to connect to, there might as well be another piece of furniture in the room instead of them. All of that verbiage is just to keep you occupied, distracted from what is really happening, giving your mind a chew toy to keep it busy like a simple dog. Some people are masters at that technique. It has always reminded me of two medieval warriors taunting each other encased in helmet and chain mail, hiding behind huge war shields. Unable to see one another, telling who the other is by the markings on their respective shields, and yet ready to kill the other as soon as they perceive the upper hand position is theirs.

There is so much more to life than that.

Do you remember that television series, canceled way too early, named Northern Exposure? I know it was quirky and a lot of people never saw some of the humor built into some of the scenes. There was one scene where the Native American woman, Marilyn, who was the receptionist in Dr. Joel Fleischman's office was sitting on the bench outside with another native. There was mostly silence between them interrupted with an occassional “Uh-huh,” “I know what you mean”, and “Yep” between them. Being or doing some act was the glue of the situation. The connection between the principles was the real action that was happening. Some people fail to see that. I feel real sorry for them about that.

I realize that there are not that many people who have taken the time to notice the felt component of life. If they have, there is the easy willingness of letting popular media and commercial interests define the unknown for them. Like the tempting candies in the shop window, its hard to resist the temptation of a readymade, generalized, commonplace answer. People that answer to the call of depth and greater realism are far and few between. And they certainly are not going to be haunting a facility like this. Unless something changes on the medical front, I figure the rest of my days will be spent in a place like this.

Makes my lack of being extremely outgoing more poignant and full of feeling. I can only begin to describe the contrast of self mastery and being cared for in the fashion practiced here. This style of care giving is not as life affirming as some might want to think. At least my memories are rich and intact. I may have lost a lot of my possessions and pictures, for now I still have my memories, but rest assured, there are ways those too can be taken. Meanwhile I find that a lot of people are here and in another way they are not here at the same time. Oh, to walk in the woods again!

Ever hopeful,

John Whiting
in the same ol' room, eh what day is it?







31 March 2014
Monday

Start of the day, what would Harpo do?


This morning, at 8:20 AM, the nurse came in with the usual eighteen pill assortment and my Copaxone injection. She was all bright and cheery, bubbling with enthusiasm and making inquisitive small talk using the royal “we”. Bustling about full of efficient movement that gave the impression of great purpose to her behavior. She reports to work at 6 AM, so I imagine that she has been up and awake for a couple of hours by now, at least.

I, on the other hand, was awakened by her officious entry and incessant verbal barrage. I sleep with a CPAP machine which is connected to me with a long hose attached to a mask that is held tight to my face with a harness that fits around my head. The machine is designed to keep a constant airflow moving through my nose, keeping my airway open. Thus stopping sleep apnea of the obstructive type from happening. I have used a CPAP since 1984, by now it is very familiar, like an old friend. One thing I have learned is that speaking while the machine is on, mask affixed, is very difficult. Once the mouth is open air proceedes to enter the nose and then rush out the mouth, giving a very breathy quality to the voice. There is no resonance coming from the chest. Because the design is to keep the airway open, certain sounds are impossible to effect, like forming an “N”. Thank you, becomes thag you. Verbal communication is not the forte of a CPAP machine.

My waking procedure has a methodic approach. First find the bed controller to raise the head portion of the bed so I can reach the on/off button to stop the CPAP machine. Then I have remove one clasp that attaches the harness to the mask so I can remove the mask from my face. Then I have to remove the harness from behind my head so I can set the mask/ harness assembly aside. At this point, like a butterfly emerging from its chrysalis, I am free. Like that butterfly, I am not yet ready to fly. I have to wipe the sleep crumbs from my eyes, take in my surroundings and determine where I am (sadly I am in the same ol' place – again, still). Sometimes I am awakened during a dream. When that happens I have to also decide how I want to respond, which reality am I in, what works here and what does not, in other words having determined where I am, I need to figure the game plan for the interaction protocol in this reality. ( I have some really wild dreams sometimes). Normally this all unwinds fairly quickly, a few seconds to half a minute. But when someone is jabbering non directive, meaningless apothegms I have to factor that in too.

What do you mean saying, “How am I this morning?” That rising tone of inflection implies a question. Are you really asking me this? Do you really need an answer, or is this another one of those mindless colloquialisms that I should answer truthfully with sufficient thought, or equally mindlessly with “OK” or “Fine”. Is it not obvious to you that I am still waking up? Do you wake up in this manner, with someone fully awake babbling inanities at your bedside, armed with stomach upsetting pills and a needle they are going to stick in you? I need some time here to come fully awake and to participate completely with this diurnal world and its strange ways. The behavior being exhibited in front of me, now, is another one of those strange ways. Does everything that happens between us have to go through the mouth? Is everything in the waking world constantly reduced to words?

I could extend my fist with my thumb erect, pointing toward the ceiling in the universal affirmation sign. But I'm not feeling so affirmative just yet, I just woke up, if you care to recall. I suppose that I could pass my open hand, palm facing down, in a back and forth horizontal fashion, signalling so-so. But some people, nurses especially, like to play junior social worker. Such a neutral expression is often an invitation for more talking, more requests for further information, more explanations as to why I would feel like that, and the felt sensation that I have to defend my feelings as if they were not the “approved” way to be on this particular morning. I was just sleeping a few moments ago. I haven't been up for hours by now like you. I haven't had any breakfast yet either. I'll bet you even had some coffee too. Real coffee, not the lukewarm decaff the facility pushes on us. And maybe real eggs of substance, not the anemic egg white substitute we get here. I'll wager that you have even made hundreds of personal choices already by the time you come in to my room to force me into your world. There is so much that I could tell you, about good quality food, making meaningful choices that have some bearing on the direction of my life, but you don't have any time for that. You have other medications to dispense to many other residents. They must stretch endlessly down the hall.Thankfully, unlike yesterday's nurse, you refrain from staying and watching me until I take all of my pills and probing for some kind of way to understand me.

Soon the nurse leaves and the incessant stream of verbal barrage leaves along with her. This nurse closes the door when she leaves, unlike most of the other nurses. Alone with my thoughts I look at the little plastic cup and the eighteen pills of various colors and sizes. The task is clear, I have to begin taking those pills on an empty stomach. Soon the breakfast will arrive and my medication is spread out on the table where the tray is to be placed. The unspoken and the spoken expectations have begun. I am without thought or care launched into another day of the same stuff. I smirk as I wonder what would Harpo Marx do? Given the overwhelming odds against him to be like everyone else, what would Harpo do?





31 March 2014
Monday noon

The perfect cup of disillusionment coffee

The breakfast tray was not cleared away until the lunch tray was brought in. A sure sign that the CENA – resident ratio rule was in force again. If there are not enough residents, there is always one CENA sent home. The remaining CENAs now are expected to do the same chores for the residents minus one other helper. This sets everything back. If you have need of a CENA, just push the call light switch. When the resident ratio rule is in effect, this means that there may be a response in half an hour to forty-five minutes, or maybe not.

The lunch was delivered with a cup of coffee. Normally the coffee is of a disappointing nature. It is a dubious brand, often the cheaper of the selection in the grocery store. It is always decaffeinated (can't have the residents hopped up on caffeine now, can we), and always served at a tepid temperature (the responsibility factor is so big for these people that there is this tremendous fear of burning one's self). So the coffee is brewed in the kitchen, behind locked doors, then not allowed out until until it has cooled down greatly. It Is served with breakfast, in the morning, when most people take on their daily caffeine load. You can have as much as you would like, but why, there is no caffeine to have any effect. The coffee is certainly not drunk for the fine flavor of carefully chosen beans, roasted to perfection, then impeccably brewed. That does not happen. If you were a coffee drinker when you came here, there is nothing here to sustain such a habit – unless you thoroughly enjoy the taste of heavily chlorinated municipal water.

Caffeine has a half life of six hours in the human body. It is easily excreted. The half life of decaffeinated coffee is negligible, except for the taste of poorly made coffee. That can haunt you for days. The lunch tray was delivered with a cup of coffee, no sugar packets and no cream in the little sealed plastic thimbles that cream is delivered. I push the call light button, hoping to request the missing coffee condiments.


Fifty minutes later a CENA responds, asking what I would like. It seems silly now. The cool coffee has gone completely cold. The originally served disappointing coffee has become disillusioning now. It is absolutely amazing to watch the special transformative powers this place has on food stuffs. Not to be confused with the act of cooking, which is debatable. Just simple tardiness and transformation. 
1 April 2014
A Brand New Month
Tuesday

I often listen to the radio on my iPod . It is convenient, small, and is easy to have nearby as I live my life horizontal in a hospital bed. I plug a pair of Sennheiser earbuds into the iPod as Apple's earbuds, even the new style, don't stay in my ears very well.

Today I was listening to the University radio station, WKAR (wkar.org). The station is non commercial so there are none of those pesky ads that do so well at injecting a for-profit mentality into my daily life. The station promotes itself as a classical and an NPR station, this means the only times there is a break for filthy lucre comes only twice a year for week long pledge drives. That I can tolerate. The radio station produces a local news program called Current State, aired every day just after the NPR Morning Edition and All Things Considered programs. Current State is about local and regional items of interest.

This morning on Current State there was an article about how the University has begun a project to digitize its video and audio records collected over the years. These records extend from the game films made by the sporting team coaches of various games over the years to be used as training for the athletes to learn from the last game, to various speakers who have been on campus. These records have been available to anyone over the years for pleasure or research. The digitizing project is being undertaken because some of the records are in their original formats in which they were made. Old video and audio tapes are slowly breaking downand disintegrating, in some cases the technology has out paced the equipment used to make and replay them. How many people can find a Betamax player any more, or a reel to reel tape player? Quick hand me that thumb drive before this one gets away. No thumb drive anymore? Then make that a USB adapter and a nano SD card, before things change again.

Hearing that article reminded me of how many iterations some of the technology has gone through. Remember 45's, LPs, reel to reel tapes, 8 – tracks, cassettes, CDs and their necessary players? Each used its own technology, that was not compatible with the prior equipment. The information these various technologies kept for us was always valuable, but it soon became a supreme hassle to transfer the information across various platforms.

I still remember hearing a lecture by the famous American psychologist, Urie Bronfrenbrenner, speak on campus once. I was so intrigued that when I found the radio station had taped the presentation, I wrote for a copy. I received, gratis, a copy of the presentation on a six inch reel of tape. I listened to it many times. When I left my home behind, I still knew where it was, on the shelf in the closet along with a box of other audio tapes I had always wanted to digitize. My little brother said he would take care of all that material for me, take digital pictures of my art on the walls, everything. Then he flipped, called it all junk and threw out or gave away everything.


It is very strange to have so much of the results of your past interpreted as trash and then similarly disposed of. Like being eviscerated as a public form of execution, as used to be done in England. Things that are important to you, stuff you have made or collected are infused with a large part of yourself, are very publicly disdained and belittled then discarded. It used to be difficult to gradually lose control of my body, I got used to that. It is still difficult to be “cared for” in a facility that can't settle on exactly what caring for someone means on a surface as well at a deeper level. I'm reconciling that one with some difficulty. But to have your own brother promise to be caring and helpful in relation to your possessions then casually dispose of them, and afterwards claim that he had no choice, there was too much “junk” and not enough time. Well, duh! What do you think I did with the last forty years? Sleep, eat and work?

The premise of Dr. Brofenbrenner's presentation comes clear to me even now. That people learn to care for one another through being cared for themselves. Just receiving food and shelter alone is not enough. There has to be a connection, when we are new born it can be physical as touching and being cuddled. As we grow older it can be verbal interactions, giving one the space to be themselves rather than being rendered into an object to be manipulated.


News Flash!!!!

I have just been told as my lunch was delivered that due to so many showers being given there won't be enough time for my shower today. If I want, the CENAs might be available to give a bed bath. My choice. ( Hmmm, no shower versus a light rubbing with a damp washcloth, what a deal.) Then to further explain the reasons for being so thoughtfully taken care of, I was told that part of the cause of why they were behind with the showers is that two residents family's are raising a real ruckus with the administration that their family member only get two showers a week. They insist that they each get one shower every day.

So what are the rest of us? An inconvenient after thought!?

My father is out in Colorado enjoying his second home in the mountains. My mother lives in North Carolina. My middle brother lives in Utah. And my youngest brother lives in town and he could care less. I am dependent on the thoughtfulness and concern of others, which as we have seen, is definitely lacking.

I am screwed. Destined to being offered the also ran status, if it is available.


Rejoining the previous thought …

Now having been changed of briefs, they were soaked (somehow the briefs are not designed to capture all the effluent one can generate since the last time they were changed at 4:30 this morning). And the urine soaked sheets and my wet T – shirt have been changed but a washcloth was only dabbed on me during the entire process. I suppose this is the real meaning of a bed bath to some people, but it really does not speak of being clean to me.

It is just this very state of being treated as a chore that has to be dealt with, that makes being here so defeating. No one seems capable of interacting with me without resorting to letting their mind hijack them into thinking through everything. First comes the thought, then comes the behavior. The tyranny of words is that they reduce everything to being so mono dimensional. If it hasn't been thought of, then it doesn't exist. Thoughts rule, feelings are just in the way. Problem is that there is way more to life than just thoughts. Feelings can go on in addition to thoughts. This makes the thoughts more real, more multidimensional. A feeling can enjoin you back into the experience guiding you to true relationships.

While the two CENAs were “cleaning me up” the one was complaining to the other that her last check was “only” $425.00, due to the low resident population and her work schedule being shortened. With some emphasis she said this low of a check better not happen again, she had bills to pay. (as if there was something she could actually do about this) Since this conversation was going on as if I couldn't hear or wouldn't be involved with any of this, I decided to involve myself. I said that I am not allowed to earn any money (Medicaid rules) and yet the Department of Human Services has been dragging its feet re-instituting my Medicaid coverage for this year and the Neurologist's office continues to send me a bill for $108.00. I just got a second notice with some dire consequences giscussed if I don't personally pay up. No change in the two CENAs. The tale continues with how such a great affront has been committed by sending her such a meager check. The race was on to get me finished before the end of the shift that somehow the actual bathing part of the bed bath never really happened. Not enough cleaning and scrubbing to equal a shower, to my way of thinking. Oh well, I suppose that I should feel grateful I'm not out on the street, at the curb. If I don't think about it, my skin won't crawl and my scalp won't itch, my next opportunity for the next shower is Friday. The next opportunity to be similarly abused and ignored, treated in ways I wouldn't do to anyone arrives with the next interaction.

Ready?




3 April 2014
Thursday

Words have always fascinated me. From the line and form of typography to the mental imagery they produce. Even Chinese calligraphy with its (to me, at least) undecipherable meanings draws me in, insisting that I pay more attention to the lines that sweep, cross, stack up, and seem to be a collection of fallen jackstraws. The concepts that words carry are even more mysterious than the fact that words can evoke images. Take, for example, Monet's painting The Magpie. The image portrayed on the canvas is a winter scene, winter bare trees with houses behind, a stone wall and a gate, a heavy coat of snow on everything, a black birdlike figure perched on the gate. Is it a Raven? The title tells us its a Magpie. The mood changes with just that small bit of information from the title.

Depending on how I feel going into seeing the image, the winter scene could be viewed as stark, a scene of devastation with the bare trees and all the snow covering everything, the bird creature could be a raven overlooking a world of death and suffocation. Have you ever seen a Magpie? They hop around in a comical fashion when not flying, looking for something that interests them, which they often pick up to fly off with. The thieving Magpie.

Many people see that winter scene and immediately think that they don't like winter. The shoveling of snow, driving in the stuff, life is a mess. Look again at the painting, there are no sidewalks nor driveways. There aren't even any roads, no cars, no driving, it was painted before all these things had been invented. They are not needed in this rural scene. It portrays a slice of life in a much different time and circumstance. Magpies are clever birds that show no fear and can be quite entertaining in the mountains at a ski resort pick nick table trying to make off with a small portion of your lunch. With this in mind the whole feeling of the painting changes.

I realize that I have the opportunity to interpret what the painting can bring forth in me. I have the choice in how I see the scene. The action is in me, not determined by outside factors. The outside may give seemingly adverse conditions, but I get to determine how to respond.

Back to words for a moment. Sometimes words can be a blueprint, a route to get somewhere, a reflection of having been somewhere, maybe how to get back to the same place again. One of my favorite word based memories is a Rumi poem:
Beyond wrong doing and right doing,
there is a field,
I'll meet you there.
When the soul lies down in that grass,
the world is too full to talk about.
You, me, even the words each other have no meaning.

Being a part of everything. No separation, no valuing, no rank ordering. Reminds me of William Blake's Augeries of Innocence:
To see a world in a grain of sand,
And a heaven in a wild flower,
Hold infinity in the palm of your hand,
And eternity in an hour.

How many times have I stood transfixed, caught unsuspecting that anything would happen, standing dumbly unable to speak as no words were sufficient, gazing at a flower – essentially lost to this world? Its easy. If you try to make it happen, it won't occur. These things don't work that way. They come upon you without fanfare or effort. Moments of Grace. It can be a sound that stands out, the gleam in someone's eye, the way the light catches the merest detail and creates a highlight that won't let you go. There is no causing it to happen, you must be aware to climb aboard when the occasion arises. And be willing to be carried off. That eternal moment is forever here, just waiting to take you away, if you can drop everything and just be with it.

How many are willing to do that? To drop the agenda, relinquish the fear of ridicule, to set aside thinking, and just notice the world waiting to take you away. It is rare and when we find ourselves thusly caught, there are others wanting to know what we are doing. Standing there doing nothing with a gleam in your eye invites questions. “What are you doing?”, “Penny for your thoughts.” or even “Hello”.

For a species that thrives on being in contact with another, we can sure make it hard on one another. My dogs were great. They were always glad to see me, but made no demands. I could feel right at home in the woods or with the dogs, but things always got hinky when people were introduced into the mix. “Where have you been?”, “How long are we going to be gone.”, “What if it rains?” The briefest of answers come to mind. Gone, for a while, we get wet. Please be quiet, lets have an experience. If I think, just to answer you, I am stuck here where you are.

Now the woods is unavailable to me, someone always thinks they are responsible for me. This creates a list of perpetual Can't Do Activities that restrict me “for my safety”, but it is really for litigation purposes, the dogs have died, everyone seems to think that the interaction between people is word driven. I have had enough of this kind of being taken care of. I would like it to stop being so determined to make me be as others think I should be.

I will lay back with the headphones on and with eyes closed recall watching the coals glowing in the wood stove on a winter evening. That should be timeless in its own right.





4 April 2014
Friday afternoon


We accomplished a shower today, myself and a CENA new to me, she works mostly on the second floor (many elderly and dementia residents). Unlike other CENAs who have worked with me from the second floor she could work with me instead of on me, she could listen to how it was best to effect the next move so it could be easier on both of us. After a week being way to close to my own body, it was nice to have some water running over my body and a scrub with a wash cloth.

I discovered where one of my favorite DVDs got put away. I watched it this afternoon. I don't have many DVDs with me here, I was very particular about buying them when I lived at home. Most movies have too thin of a plot line to watch more than once. They seem to be more of a sensational satisfaction device rather than telling a good story.I guess Hollywood has fingured how shallow the public can be and get away with producing low quality material. The DVD today was about Andy Goldsworthy, the artist, and his work. Although it is a bout seeing some of his work in progress and some finished pieces. It is no usual documentary or story. I have always enjoyed seeing it again and again.

I found myself remembering one other DVD that I bought, one which never survived my youngest brother's style of clearing out my home for sale. He either threw it out or gave it to the auctioneer to dispose of. Amazon lists it for sale at eight dollars, I may buy myself another one. I first heard of this movie when a friend at school mentioned to me that one scene in the movie reminded her of me. In the movie young Beethoven flees out a window and down a down spout to escape another return and an another inevitable beating a the hands of his drunken father. He runs to a nearby pond where he doffs his clothing and floats face up in the water watching the stars. In that one scene you can see a method self-solace and a way to leave the pettiness of living among people who can't see beauty. Its like returning to the higher self.

In a way I could see how that scene reminded my classmate of me. I don't sustain beatings from a drunken father. But I always have found solace in nature. Like the line from Linus in the peanuts comic strip, holding his blanket to the side of his head he states that he loves humanity, its people he can't stand. I can see that, the potential of the group soon fritters away when you get down to the individual level. What rises up to fill the void is often petty, small minded, egoistic, self interest dominated. It is not very becoming or the stuff relationships can be built on.

People are funny with relationships. I once read in my undergraduate education that more times than not the mutual friends of a couple, after they divorce, tend to shun the male and gather about the female. Its some sort of unspoken taboo to be seen fraternizing with the male, but not so for the female. I couldn't believe it when I read that. I thought, “No way” they must not have been that good at being friends. When my divorce happened, after thirty years of marriage, the friends disappeared overnight. Poof! I was an instant pariah. I couldn't figure what I had done wrong. The separation was amicable, even though I didn't agree with the divorce settlement, it would have cost even more in attorney fees to fight it and I probably would have lost anyway. I didn't bad mouth her to others. Yet all of our friends avoided me, even the highly educated ones, including the next door neighbors, who had known us since we moved in twenty years prior.

I would drive by during warmer months and they would be out on their back porch. Never a wave or any acknowledgement I was passing by. The wife used to call about once a week just to see how we were doing. After the divorce – nothing. Once I had an occasion to call them, I screwed up my courage to put this lack before her. I said that since the divorce they never called any more. She quickly said that I never called them either. Before the divorce I was often on the phone or over at their house. Somehow it is a whole new ball game after a divorce.

Other professional friends seemed to suddenly “forget” that they ever knew me. A psychologist friend ran into me in the Post Office less than a year after the divorce. He introduced his son to me, less than six moths prior both of us had been to their house to have an evening of playing board games. The wife of this couple is a child psychiatrist, she had a strong competitive streak to her. She was always choosing up sides to play, she had great delight in moving the game pieces about the board always with a comment (sometimes delighted or not as to whether she was winning or not). I didn't care about winning, I just enjoyed the playing. This drove her nuts, especially with some games like Trivial Pursuit that needed an answer of oddball facts – which I can be good at. I still remember her being so totally unhappy that I knew that a ship's carpenter is called a Carfindo. How did I know? Did I memorize the cards ahead of time? She was sure I had cheated somehow. Yet time after time I would come up with the correct answer. She knew that I was bright, she never forgave me for that. I suppose if she was that unable to be relaxed enough to see me more clearly, I shouldn't lament her choice of who to remain on friendly terms with. No great loss, actually. I guess it shows that we are willing to swallow pretty much anything just to have contact with others. The question is at what cost?

Speaking of costs, being here in this facility day after day and so few people come by to visit, I can count the monthly occasions on a finger or two. What do you suppose that might feel like? I am tired of being overlooked or taken for granted. When the nursing staff come in the room first thing every morning, they are all bright and cheery. They ask politely how am I? If I just give the knee jerk response with no fore thought, Ok, or fine, they are happy and then go about their business. If I am truthful and say how much one day is the same as the next, how boring life can be here, they take that as their invitation to be a cheerleader, or my personal coach full of fixes and what I should do.

The message that keeps being sent to me is that the extra time and effort is not going to be made available, maybe to others I am not worth the added effort. Everything is reduced to a monetary value by which things are rated. I suppose this explains why I always was so comfortable in the woods, the animals, trees and landforms didn't care if I had the right socially correct clothing or accessories. I was accepted at first blush. It seems that most people can't do that.


No one seems interested in the things I have to say about people's lack of openness. There is often a very significant silence full of great meaning nobody wants to notice. So I notice and let it go unspoken to. This is so sad.

Tuesday, March 25, 2014

25 March 2014
Tuesday evening

Now and Then

Its fun to look out the window and still see daylight after dinner. Today is, of course, a shower day, so I was up in the wheelchair for a while after that, being vertical, seeing out through the glass front doors, feeling the cool breeze every once in awhile as the doors are opened for foot traffic. Its still cold, but not the assaultive bone chilling, stone cold that the weather has been this winter.

I am a hopeless romantic and a little kid at heart, for I have always liked snow. During the stultifying days of August I have often dreamed of snow and the winter season like most people dream of their gardens at this time of year. As the autumn progresses and the days grow shorter, the air took on a less viscous quality, that was cooler and more crisp it was a sign that around the end of the Thanksgiving season the first furtive snowflakes would be flying. There was joy in my heart that real snow would be here soon, accumulations of snow, skiable snow, snow that gathered tracks of passing animals, which like photographs retained the image of animal footprints that may have been left under cover of night.

The season of dressing in layers, I always belonged to the thermally responsive set. Cutting , splitting and stacking firewood for next season (that always seemed like such an impossible chore during the warmer months, that task seemed destined for the cooler times.) Somewhere in my house was a photograph of me in some felt boots, a pair of gym shorts, a T – shirt, some work gloves and some dark sunglasses surrounded by sunny snow as I am splitting firewood. I sure do miss those days. It seemed so magical to be working outside on a still winter day, using my body, making preparations for a fire in the wood stove during the heating season. I remember when that photograph was taken, I was comfortable, I had been at it for hours and only got too warm. Luckily for me it was cool enough to peel of a few layers. Everyone else was sedentary, they only “thought” the weather was cold, so for them, it was once they got out into it.

When I used to go skiing out west I used to dress in layers as well. But often there was no place to put the layers peeled off. And once I slowed down, as on the chair lift, the layers were soon needed again. I wore a shell parka with under arm zips to open up some heat trapping jacket to ventilate when I was warm. When I got off the lift at the top of the mountain the jacket was completely zipped up. After a few hundred yards of skiing down the hill I would stop to let my screaming thighs have a rest, my heaving flatlander lungs a chance to pay down my oxygen debt, and to carefully unzip my quickly becoming too warm cocoon. Rested after a bit of scenery scoping of we would go again. The next stop another several hundred yards further downslope the wool shirt under the jacket would be unbuttoned, my arms would be brought out from the inside of the now unzipped sleeves of the jacket so it was more like an open vest with flapping sleeves that looked more like flags streaming out behind me as I once again moved down slope. Compared to those stylish folks in the nice little ski suits that could have walked right out of the fashion pages, I must have looked a sight, like a runaway clothing rack flying down hill. But the object was to ski, not lounge around in the warming shack sipping way too expensive mugs of hot chocolate impressing one another with their latest skiwear.

There were some ski areas that adapted a clothing dress code. They didn't want any poverty ridden skiers mingling with their clientele on the slopes. Usually these areas were more destination resorts that family oriented ski areas. Their lift tickets were correspondingly more expensive and they wanted to keep up their exclusive image. Skiing in jeans was not accepted.

Of course good skiers often skied in jeans as they rarely fell down. The jeans wouldn't get wet and they were therefore warm enough. I had a friend who used Scotch Guard on his jeans to give them that extra water shedding quality. I often fell about once a week during seven days of skiing. I would catch an edge and next thing I knew I was sliding on the snow watching the bare branches of the trees against a background of blue sky. I must have made a spectacular scene going down as people would call over to ask if I was alright.

The ski boots were insulated with a foam called “Flow”. It was a thermoplastic foam that when warm would adjust to the foot. This made for a great fit and as your feet swelled the foam adjusted. There were no tight and uncomfortable places. It was warm even on those long series of chair lift rides to get to the top of the mountain. The down side was after a day of skiing the foot had become sweaty and the inner boot was damp. If the boot wasn't dried and warmed in special boot warmers over night they were impossible to get on the next day. The boot was cold and damp and the foam wouldn't flow, they fit like a vice and the joy of flying down a mountain face was elusive all day. When the boots were dry they worked like a charm.

Often at the end of a day skiing everyone was next to their car taking their ski boots off and putting comfortable shoes and clothes on for the drive back down the mountain. Skis would go on the rack on the roof of the car, some beverages would be produced to resupply the body with fluids from a day of heavy breathing in dry air. During this time I would often take my ski boots off and remove the only socks I skied in, street socks, and stand barefoot on the ice next to my car. I calmly put the skis on the rack, changed my parka for a light fluffy sweater, then finally would sit down on the driver's seat to put on some athletic shoes. While standing barefoot on the ice my feet were steaming. Many times people spied my bare feet on the ice, then they saw the steam rising from my feet. Comments were made, some people took pictures of my feet steaming on the ice, the sun was setting on another day of fun in the Rockies. Right now somewhere someone is going through a bunch of old pictures, probably in a shoebox, wondering why there is a picture of someone standing bare foot in the ice of a parking lot at a ski area in the mountains. It was a magical time. I am glad that I was there for the experience.

This morning, before I got up to have my shower, I looked out the window. Snow was flying through the air. As always I was happy to see the snow fly. The radio said the temperature was four degrees with a high expected of fifty – four degrees, not bad for early spring. Soon it will be very warm and humid, the sun will bite my Celtic skin and I will retreat to the shade when ever possible.

For now the day is young, a shower lies before me and the vestiges of winter are still plying the air. Everyone is upset as the weather hasn't changed fast enough for them, the State inspectors are in the building digging into everything, creating fear and loathing and I'm the only one who seems to appreciate the snow. I'm not really a contrarian, but I do see much more acutely what others often fail to recognize. I'm glad that I was there.


John Whiting